Living with endometriosis is like having the biggest secret in the world and not being able to share it with anybody. It gets to be a bit obnoxious always complaining...."my side hurts" I even annoy myself. So I keep it to myself.
When I was first diagnosed with it 16 years ago, they didn't know much about the condition that effected so many women. Almost 30% of women who have endometriosis do not even know they have it, because they have no symptoms. I am in the 70%.
Having chronic pain is what controls my day. I do not let it ruin my days, but it does control it.
I was able to have a break from the pain for the past few years, after having a few surgeries and going through "menopause" but it is back. After many blood tests, MRI's, ultrasounds over the past few weeks and a few different doctors, many days in the Urgent Care.....all of my tests have returned. Endometriosis related. ...which pretty much means they don't know.
I am so thankful that I do not have lung cancer (one doctor was sure I did), thankful I do not have liver disease (again, another doctor thought I did)....thankful that I know which route to go again. So back to the specialist I go. Back to the fertility & endocrine center @ UW. Most likely I have endometri cells on my kidney, or liver....which they will be able to find:)
I will continue not to let my pain ruin my days. I will continue being so thankful for my Cierra Beara. I will continue loving my life:)
I'm so sad to hear that. Thank you for sharing - I will pray lots for your specialists that they will know what to do and pray lots for you that you will be able to handle the pain and frustration. Love you!
ReplyDeleteSo, miss Karla, last Monday I was diagnosed with endo and a 5 cm complex cyst. I went finally went it because of absolute chronic pelvic pain, and was so tired of it. I have days where it hurs to stand up straight, and dull even pain across my pelvis had become the norm. Sex hurts, and ovulation us ridiculous. I remember you having endo...and am so sorry you are having troubles, but so happy it is not liver or lung issues. I hope all goes well at the uw and answers are found for you.
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